Mon pays

Ce n'est pas un pays, c'est l'hiver

A scary email to receive less than a week before the thesis submission deadline

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I bet you thought I was done posting about my thesis. Last Friday (6 days ago), I received this email after I had the pleasure of submitting my thesis electronically.

[Your supervisor] approved your e-thesis on September 23, 2011 at 11:51.

If your thesis has been accepted by all your supervisor(s), it has been sent to GPSO for processing.

If your thesis has been rejected, please make the changes requested by your supervisor(s) to your original document*, and create a new pdf, delete the file on the server, and upload the new file.

You can track the progress of your thesis on Minerva.

Hooray! It was good news to receive this email, and I tweeted about it immediately, of course.

Then, this morning, I received the following email.

Dear Benjamin, … We [at the philosophy department] have been told that you haven’t submitted your thesis electronically, and this is one of the graduation conditions. Can you do this immediately? The conditions have to be met by Tuesday, 4 October. Best wishes.

October 4th is on Tuesday (5 days from now). I’m pretty sure that my thesis has been submitted electronically. Here is my evidence:

  • Minerva lists my thesis as being uploaded and approved
  • I received the aforementioned email from the e-thesis computer

So I really don’t know what this fuss from the philosophy department is all about, but now I’m nervous that something’s messed up.


Moral dilemmas generated by a nurse’s professional obligations

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In loose and general terms, a moral dilemma is what happens when someone is caught between two (or more) conflicting legitimate moral claims.

A resolvable moral dilemma, on the one hand, is one in which one moral claim on the agent in question is more important than the other. In such a case, the agent is in the position of having to choose between a greater and a lesser evil.

An irresolvable a moral dilemma, on the other hand, occurs when someone has to make a decision between two (or more) options, where morality gives absolutely no guidance regarding which decision to make.

I find moral dilemmas utterly fascinating, and one came up in class last week. We were talking about professionalism in nursing, and this case was never resolved in class (to my satisfaction, at least).

As a nurse, there are certain obligations that arise just by virtue of the fact that a nurse is a professional. For example, a nurse is bound by confidentiality, just because she is a nurse. (And not necessarily because she offers a promise of confidentiality to any particular client.) It would be severely unprofessional for a nurse to disclose the physical condition of one of her clients to someone who is not directly involved in the client’s care.

Conversely, a nurse sometimes has a duty to share certain pieces of information regardless of the wishes of the client for the information to be kept confidential, and this duty arises just because she is a nurse.

It’s really easy to see how these two professional obligations in particular could result in incompatible but legitimate moral claims on a nurse’s conduct. There are some examples where it’s clear what a nurse should do, but then there are a lot of cases where it’s not so clear. I’ll lay out a number of such examples to illustrate.

The child molester

In this case, a client is sexually molesting his nine-year-old niece, and he tells the nurse, but asks her to keep it a secret. Here, it is clear that regardless of the wishes of the client to keep his conduct secret, the nurse has a professional obligation to tell certain people (the niece’s parents, the police) about the molestation because of the degree of harm to the niece. I think it is non-controversial that we could characterise this as a classic resolvable dilemma—the nurse should break confidentiality, which is a legitimate moral constraint on her actions, but because the nurse also acts to prevent harm to the patient, she chooses the lesser evil.

This case is clear. The wrong of breaking confidentiality is clearly outweighed by preventing the wrong of further sexual exploitation. But what about cases that are otherwise parallel, but in which there is less harm to the child? Here’s a few other cases with decreasing harm to the niece.

The enabler

In this case, a client is saving his pain medication and giving it to his nine-year-old niece because she likes the way it makes her feel. He tells the nurse, in full expectation of confidentiality.

Cigarettes

Here, the client reveals that he is buying cigarettes and giving them to his nine-year-old niece. He has not told the niece’s parents, and indicates that he wants the nurse to keep this quiet.

Alcohol

A client says that he is buying beer for his niece. The parents don’t know, and he indicates that he expects the nurse to respect confidentiality in this matter.

Lots of candy

This is the same situation as the previous, but instead of alcohol, the client is giving his niece an unhealthy amount of candy.

Bad TV shows

This is the same situation as the previous, but instead of candy, the worst thing that the client does that has an impact on his niece’s health is that sometimes he lets his niece watch cartoons on the television. He doesn’t want the nurse to tell his sister (the niece’s mother) because he is a somewhat insecure man and he is afraid that if his sister found out that he and his niece were bonding over Looney Tunes, he would be teased.

In the last case, Bad TV shows, I think most people would say that the nurse should respect the client’s wish to keep the matter secret, since the harm to the child is minimal. That is, if a nurse spoke to the niece’s parents, it might even be seen as an unprofessional breach of trust.

So at either extreme, it is very clear what the nurse should do. In The child molester, we think the nurse ought to say something and break confidence. In Bad TV shows, we think the nurse really doesn’t have good enough reason to break confidentiality. It’s the cases in between where there is some uncertainty. Where do we draw the line?

Probably The enabler is a case where confidence should be broken. To be honest, I’m not sure about Alcohol.

Here’s another consideration: for some moral dilemmas moral philosophers will say that they are only resolvable “with remainder.” That is, even if the moral agent correctly identifies and takes the horn of the dilemma that is the lesser evil, the option that is not taken still retains some of its moral force, and requires something on the part of the moral agent to resolve it, like remorse, regret or apology.

In a case like The child molester, if the nurse breaks confidentiality to tell the parents and the police about the exploitation, most people won’t think that anything (like an apology) is owed to the molester. In the less extreme cases, this becomes less clear, I think, and especially if we don’t make the assumption that the client in question is doing something that she knows to be wrong.

I don’t have answers to the questions here. I’m not even sure if this “balancing” of interests is the best way to conceive of the problem.

The “correct” answer that we were given in class is that before the client offers us a secret, we should disclose to the client that, depending on what the secret is, we might have to tell someone. The problem with that answer is that a nurse does not just come by incompatible moral obligations by virtue of poorly thought-through promises she makes. Confidentiality and concern for the well-being of others are obligations that bear on nurses regardless of whether they say that they will keep a secret or not, and so a more fine-grained and nuanced approach to this problem is needed.


But what do we call them?

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In school this year, we have spent a good deal of time talking about our relationship to our patients. Actually, that’s not true. We have actually spent more time talking about our relationship to our “clients.” It’s surprisingly difficult to find any reference to “patients” in our readings or texts.

There has apparently been a movement away from referring to someone as a patient, because of the meaning of the word, I suppose. In philosophy, the word “patient” is sometimes used in opposition to the word “agent.” For example, a moral agent is someone for whom her actions, character or the results of her actions are the proper subject of moral evaluation. By contrast, a moral patient is someone for whom her treatment by others is the proper subject of moral evaluation. (So a human being would be a moral patient. An inanimate object would not be a moral patient, since you can treat an inanimate object any way you please without it being even slightly wrong, as far as the object itself is concerned.)

If that is the way that we conceive of a patient—someone who is acted upon, then we make an implicit divide between “us nurses” (the agents) and “those patients” (the patients). On this conception, it is we who act upon the patient to bring about health. By labelling her a “patient,” we take away her agency.

I can understand this concern. This is why the language has changed. We now interact with “clients.” On this model, the client comes and uses the services of the nurse. I think this word is better than the word “consumer,” but only just. It has a very economic feel, I think. When I call someone my “client,” it sounds like I see them as someone with whom I am about to have a business transaction.

What’s funny about this is that I’ve had some instructors at McGill who disapprove of the word “patient,” and others who disapprove of the word “client.”

I’m tempted to just use the word “buddy.” E.g. “I’m going to give my buddy his meds.” It’s non-gendered, it doesn’t imply a lack of agency, and it doesn’t sound like I mainly have a business transaction in mind.


An alternate ending to Captain America (or “Captain America and the Therapeutic Misconception”)

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The therapeutic misconception

In medical practice, the efforts of the medical team are directed toward therapy. That is to say, when a doctor or a nurse or some other medical professional performs some action on a patient, her actions are morally underwritten by the benefit she hopes to provide to the patient.

For example, a blood draw is somewhat uncomfortable. But we allow medical professionals to take blood if it is done for the purposes of diagnosis. Same thing with setting a bone—very painful, but it is allowed because it is aimed at providing some direct medical benefit to the patient.

In human research, this is not the case.

In human medical research, the efforts of the research team are directed toward gaining useful and generalisable knowledge. That is to say, when a doctor or a nurse or some other medical researcher performs some action on a patient, her actions are not morally underwritten by the benefit she hopes to provide to the patient. Rather, her actions are morally underwritten by the benefit she hopes to provide through the use of generalisable knowledge in informing medical practice.

Blood draws are very common in many kinds of medical research as well. But they are allowed in human research, but not because the patient will necessarily receive any benefit. Instead, it is the benefit to others that makes drawing blood from the patient permissible.

To put it simply, medical researchers are not necessarily trying to help their subjects. That is not what they are doing. This is probably pretty clear at this point.

But what about cases where the patient-subject is receiving some new “experimental” therapy? Perhaps our hypothetical example patient-subject has already been through multiple therapies, none of which worked, and this therapy is the patient-subject’s last best hope.

It’s in cases like these where the line between therapy and research becomes fuzzier.

The therapeutic misconception is something that happens when patients regard medical research as medical therapy. Often, patients will have an exaggerated idea of the chances of success of the procedure. In other cases, patients will full-out not understand that it’s possible that they would be randomised to a control group and not receive any treatment other than a placebo.

The therapeutic misconception is a major problem in human research ethics, and different ethicists have had different ideas on how to deal with it. Some have suggested that doctors should wear red labcoats when they are working in their capacity as a researcher, in contrast with their normal white ones. Others have suggested that patient-subjects always be compensated financially for their participation in a trial, so that the patient regards the money she receives as the benefit from the trial, rather than the “treatment.”

I saw Captain America on Friday night. While it is a fun movie, it doesn’t help things too much in terms of the therapeutic misconception. I know it wasn’t written with human research ethics in mind, but really, we’ve got a guy who is a subject of a medical experiment, but who receives tremendous medical benefit.

People who are participating in medical research watch films like this and even though they know that they won’t come out of the research protocol standing a full two feet taller with rippling muscles not having spent a minute at the gym, they still get the wrong idea—that when you’re recruited to human research, one of the researcher’s goals is direct medical benefit to you.

Alternate ending to Captain America

Most of the movie would be the same, but just as Captain America is about to save the world, we find out that Steve Rogers was actually randomised to the placebo group. Captain America crashes the evil airplane into the ice and everyone says, “No wonder! It was just a placebo all along.” The body is never found.

See how that’s so much better than the original? :P


LaTeX, BibTeX and ibidem

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Apparently, having been trained in the philosophical tradition, I’m unused to citing sources. My supervisor says that a typical attitude for a philosopher to take toward sources is that if your bibliography has 6 citations, that’s 5 too many. So, on the advice of my supervisor, I have been trying to include more references to published sources in my thesis. As he puts it, “think less; read more.”

Having done that for the last chapter or so (I’m going back later to add lots and lots of citations to the other chapters), I realised that the citations were taking up way too much space on the paper. So, I put them all in footnotes. They still took up a lot of space, and they were hard to read down there.

So, I decided that I should change my citation style, so that when I have multiple citations from the same source, the second, third, etc. citations after the first one would just be “ibid.” (From Latin ibidem, meaning “the same place.”) This would have been a time-consuming and mind-numbing task, going through my entire thesis and picking out all the citations where there’s two or more in a row and replacing all but the first one with “ibid.

Fortunately, I use LaTeX and BibTeX (and OS X front-ends called TeXShop and BibDesk) for writing my thesis and citation management.

I found a great package, called inlinebib that does just that. It actually took a bit of digging to find a bibliography style package for LaTeX that worked the way I wanted it to, with ibidem and all. But once I found it, all I had to do was put inlinebib.bst and inlinebib.sty in my project folder, then write \usepackage{inlinebib} in my document preamble, and it worked just fine!


A non-paternalistic justification for human research subject protections

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Just this morning I had a great meeting with my prof regarding my thesis. I showed him the outline for my thesis and we put together a schedule for completing it. He even gave me a few references to go on in terms of researching the topic. I’m starting to feel good about it.

I’ve had a number of people asking me what my thesis is about, so here it is in brief:

There are restrictions that institutions place on the sorts of human research that can be done, and the justification for such restrictions are usually given in terms of subject harm or benefit. Unfortunately, such justifications are paternalistic. By that, I mean there is a sense in which, if someone wants to engage in a very risky research protocol as the subject, what right does the institution’s ethics board have to stand in her way?

That said, there is also a sense in which we do not want human research to just be a free-for-all house of horrors, where anything goes. My thesis is that we should rather justify human research subject protections in terms of protecting the integrity of the human research project as a whole.

So, in colloquial terms, I’m suggesting that rather than saying, “We won’t let you do that risky research because we know better than you what ends you should be pursuing,” rather we should say something more like, “We won’t allow such risky research because allowing such research to go on would make the human research enterprise look sketchy.”

An interesting application of this thesis is in the area of phase IV human research studies. A phase IV study is one that occurs after the drug is already approved for use, and it is essentially a marketing study. The drug company wants to see how to best market the drug to doctors and patients. Often it is even the marketing division of the drug company that applies for the phase IV study.

Ethicists have generally been trying to criticise phase IV studies on the basis of some sort of risk that it may pose to the research subjects. This position is difficult to hold because really, the drug has already been approved for use on humans. I will argue that it is much more defensible to say that such studies are unethical because they do violence to the integrity of human research.

Et voilà. My thesis. All I have to do now is write 80 pages on that, and I’m golden.


I specifically asked for the Borg implant

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Maybe next time

Maybe next time

I had a minor accident a few weeks back, where I suffered a blow to the head. I didn’t think it was too bad, so I didn’t end up going to the hospital for it right away.

I didn’t plan on going to the hospital at all, actually. I had a great black eye, and I just told everyone that I got into a big fight.

Come to think of it, “I didn’t think it was very serious, so I didn’t go to the doctor” is a theme that recurs in my medical history a lot.

It wasn’t until my eye got infected that I went to the hospital. I went in, told the ER doctor my symptoms:

“Itchy eye, red eye colouration, headaches, watery eyes, runny nose, sore throat.”

She took my temperature, blood pressure and heart rate.

“You have a fever, Mr. Carlisle,” she told me, struggling with my last name (French Canadians have a hard time figuring out the silent S), “When you blow your nose, does the phlegm have any colour?”

“Yes, in fact. It’s black.”

“Black?” she asked, surprised.

You know that you have something good when your symptoms shock the ER doctor. I blew my nose and proved it to her.

I sat in the waiting room until another doctor came to see me, and pronounced that I had pink eye, and was about to send me on my way when I asked if the pink eye would explain the fever that I had.

“Fever?” she asked. That’s two ER doctors that I shocked.

She started feeling around my skull at that point, seeing where it hurt and didn’t, and decided to send me for a CT scan. I dripped my pink-eye tears all over the CT machine. I’m sure that the next 5 patients to use it will get infected, thanks to me.

When the results came back, she told me that I had broken my right orbital floor, and the tissues surrounding my eye were actually falling down into my sinus. That would explain the fever, sore throat, and the blood in my phlegm. There wasn’t any bone supporting my right eye, so it was literally falling through my face. I would need surgery.

I was sent to see an ophthalmologist, who told me that my right eye had fallen about 3mm from where it should be. On the upside though, he told me that I still have 20/20 vision, and that there’s no nerve damage or damage to my retina. The only problem is the broken bone and the pink eye.

I was sent to see the surgeons who were going to fix my face, and they sent me home for a week and a half, to let the infection go away, so that they don’t let it get inside my skull. On Friday, August 6th, I had my surgery, and despite my specific instructions that they replace my right eye with a Borg-style implant, they only put a metal plate in my skull, to fix the bone, and put my eye right back where it should be. I will make a full recovery and require no bionic implants at all.

The swelling has gone down almost entirely, and I’m feeling good. I think they must have made the incision into my head somewhere inside my eyelid, so there won’t even be a scar.

There were only two really scary parts about this whole thing:

1. When I am put on morphine, I have hallucinations. Not really bad ones, but I consistently have them. This time, I seriously believed that if I stopped consciously thinking about my breathing, then I would stop breathing, and probably die. I was very afraid to go to sleep.

2. When I mentioned to the doctors that I’m a MA bioethics student at McGill, they had a sort of “we better be on our best behaviour now” thing going on, which scared me. What do they think they can normally get away with, that they can’t with a bioethicist watching?


Why not volunteers [sic]?

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"Why not volunteers?"

"Why not volunteers?"

As an MA student in bioethics, I am very interested in the advertisements on the Métro for participation in phase I drug studies.

And that’s not just because they were very tempting back when I had no job and no prospects at the end of the school year in April.

I have found the evolution of this particular advertisement to be very notable indeed. A few months ago, when I first noticed it, it went something like this:

“Up to $4000 for healthy men, 18–45 / A clinical trial? Why not!”

It would run in English first, then in French, and in the version that they were running a few months ago, there was no translation problem.

Now, it is the same message, except instead of “A clinical trial? Why not!” it says, “Why not volunteers [sic]?”

English mistranslation aside, the emphasis of the message has changed. At first, the tone was more on the “Why not?”—it was more like the advertisers were saying, “Yeah, we know it’s a clinical trial, but let’s throw caution to the wind! What could go wrong?”

Now, the emphasis has changed. It’s like the advertisers are now trying to go for more of the “It’s for a good cause” feel. “Volunteer. Why wouldn’t you? It’s so that these kind people can develop drugs that will help all of us.”

“Why not volunteers?”


On Thursday, I quit my job

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… Effective August 1, 2010.

A lot has changed over these past few months. My original plan, coming in to the summer was to work at my job for a year, and take a year off school, or if I could manage it, work at my job and finish my thesis at the same time. As the summer went on, I quickly discovered how unfeasible that plan really was.

First off, when I went to the philosophy department to see if I could find a supervisor, I discovered that there was a professor who would have been perfect for supervising me, but she took last year off for maternity, and this year she’s on sabbatical, and so I just happened to be doing my MA on the two years that she wouldn’t be here.

So a couple weeks ago, I spoke with a professor regarding my situation, asking if it would be possible to take a year off, since that would give me a chance to recover financially and to figure out what to do for my thesis.

I had a lengthy conversation with that was emotionally cathartic, rational and productive. The prof I spoke to was my Human Research Ethics prof from last semester, who was also the acting head of the Bioethics MA programme at the time. When I told him my plan, his response was basically:

“No! Don’t take a year off! You’ll never come back!”

So we talked about that for a while. And the big thing that was keeping me from continuing in September was the money. I had done some math before the phone call, to see what my situation was, and really, I wouldn’t need that much more to make it through the school year. A second TA-ship in my second semester would do it, but I can’t count on getting one of those, necessarily.

The prof called me back a few days later with an offer of some grant money for a research assistant-ship, and he suggested that I re-arrange my thesis so that it aligns with the RA-ship. I’m going to be researching the ethics of prediction in human research.

(The term “RA” is confusing. At McGill, it means “Research Assistant,” but at UWO, where I did my undergrad, it means “Residence Advisor.”)

This is great. Now, I have a supervisor, a thesis topic, and a bit more money.

I estimate that if I take all the money from my TA-ship, my new-found RA-ship, the money in my bank account, everything I will have set aside by September, and what I expect to receive from OSAP, I will have just enough to make it through the school year, as long as there are no nasty surprises.

But I suppose, even after all that, the question still remains, Why did I quit my job?

I’m going to take the MCAT this September. I’ve been preparing for this for the last few weeks (I’m almost done orgo!), and I want to take the month before the test off, so that I can focus on my studies. I’m able to do this because I got paid for some old freelance web design work that I’ve been doing off-and-on for the last few months.

My plan for the month of August will be to get up like I normally do, at 5h, go to the gym for 6h30, be done there by 8h30 and hit the library by 9h. Then I’ll spend the day there, either working on my research, or prepping for the MCAT. I’m going to study like it’s my job.

I’m glad of the design job that I had this summer, but I’m excited about the beginning of August, too. :)


Figuring things out

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So I’m trying to figure out what I’m going to be doing, come this September. I have a few options right now, and it feels like on the even-numbered days, I’ve made one decision, and on odd-numbered days, I’m of completely the opposite opinion.

To catch you up, last semester was really disappointing to me in a lot of ways. I was closer than I ever have been to dropping out of school. It got so bad, that in a counselling session with a therapist at McGill, I explored the question of how bad an academic programme would have to be before one would be justified in suing McGill for one’s tuition back.

After I stopped being so bitter about that, I ended up with a job, and a pretty decent one, too. It’s close to where I live, the money is good, and I get to be creative at work. I’m working as a designer at a marketing company. It’s an excellent job, and I’m glad for it. I’m still in a sort of probationary period that will last 3 months, where they’re still deciding whether they want to keep me, and I’m still deciding whether I want to stay there.

I’ve been enjoying living with the privileges of a regular paycheque. I don’t have to worry at the end of the month about whether or not I will have enough money to cover rent. This is a step up from the last semester. They ran out of TA-ships before they got to me, and so money was very tight, and I had a spreadsheet going that calculated, based on my previous expenses, how long I had until my money ran out.

So when I landed this job, my first thought was that I could finally relax a bit. And I have been! Things have been pretty decent of late. I’m enjoying things being stress-free, by comparison to this last year.

One of the options that I am considering is taking a year off school to de-stress, pay off some debt and enjoy not having to worry about money or school. There’s a few reasons I’m considering this:

I don’t think that I’ll get much by way of student loans for this year, and I have no reason to believe that I’ll get a second TA-ship this year either, which means I’ll be in a much worse financial situation than even last year, unless something unexpected and good happens.

To make it through the year, I’d only need a few thousand dollars more. You wouldn’t think that would be so hard to get, but it’s easier to get a full-time job than it is to get a job, even part-time, that is compatible with being a student.

I could probably make it through the year if I knew I was going to get a second TA-ship, or if there was an RA-ship (Research Assistantship) on the horizon somewhere, but things are looking grim.

I’m going to apply for OSAP anyway, even though I am sceptical that I will get anything from them. And I’m going to send out some emails to profs to see if there’s any RA-ships that I can do during the school year. I don’t need a lot of money. I just need enough to get through the second semester.

In the meantime, I’m going to keep my options open as best I can. If I think I can make it through the year financially, I will give notice that I’m quitting my job when the probationary period ends.

Does anyone know any profs at McGill who need research assistants who know philosophy and medical science? I can write, think critically, closely read dense papers, and I know my way around a pipette.


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